I think I’m starting to lose my “umph” when it comes to raising awareness about the conditions that we are living with. Some of it, I believe, is the platform I’m on (Facebook) and I need to make a permanent move over to Instagram where the act
There’s been a few changes to the design of the logo since I started journaling our journey. Originally, my Page on Facebook was named “Emmy & Me: a journey with POTS” but I decided that I wanted this endeavor to be about the journey and not imply that it was just about Emmy and Me.
We just returned from a quick getaway to New England to meet-up with our son and his wife. We walked around Sleepy Hollow, visited a few pubs and taverns, and also the Sleepy Hollow Cemetery where the author of “The Headless Horseman” is buried. I really love visiting New England in the Fall. There is nothing m
We just returned from a weekend getaway to Pittsburgh. We went to see one of our favorite outlaw country artists, Chris Stapleton. There is something
Yesterday morning while catching up with my son on life, I told him that I had finished an interview with Standing Up To POTS for an upcoming podcast as a “caregiver”.
I have always loved this photo. I do not understand why I was so drawn to it when this photo was taken in November of 2015. I have no idea what compelled this photographer to lay down in the field and snap a shot of
A few years ago, we were on a family vacation on the Outer Banks of North Carolina. It was a hot week. We rented
How has everything changed so dramatically in 9 years? I have a love-hate relationship with Facebook memories. This photo was taken before POTS on May
We are coming off of a really, really bad couple of weeks of flare-ups from the weather. Last week, the three of us spent most
May is Ehlers Danlos Awareness month and that makes it a perfect time to share our story and journey. I would like to talk to